Wednesday, November 24, 2010

A PEACEFUL REST

Wednesday, November 24, 2010

Dad peacefully passed away, yesterday, November 23 at 4:45 PM. Mom was at his side. Dennis, Debbie and Heather, Tim, Mark, Shelly and her family and John, Jake and I were there also. Mark texted me early that morning to tell me that Dad seemed to have slipped into a coma around 5:00 AM. When I arrived it was apparent Dad would be leaving us soon.We woke Mom and then the others and gathered around his bedside for family prayer. John and Jacob gave him a blessing of release.

Throughout the day, we monitored his condition and Mark gave him medication as needed. Nancy, our hospice nurse, told us what to expect in the coming hours. Mom has been strengthened throughout this difficult time and as she sat by Dad's side she had the courage to tell him she was okay and that it was okay for him to go. She talked to him of going to see his parents, and his baby brother. She even asked Dad to give her love to her parents when he saw them. She told him to go into arms of his Savior. Her words and touch always seemed to calm him. Each of us also took a moment of 'alone' time with Dad, giving us each a few minutes to say good-bye.

Dad's breathing began to alter around 4:00 PM and he peacefully drew his last breath about 45 minutes later. The whole thing seems surreal, yet I know he is gone when I walk into his room and see his empty chair.

Mother is holding up. It is hard for her to rest with so many people about, and we are doing our best to help her. Dad's funeral service is Saturday, November 27 at 1:00PM with a viewing about an hour prior to the service and will be at the Springville Stake Center.

Tuesday, November 23, 2010

Rocky Day

Today has seemed to last way beyond its ture boundaries. Dad communicated very little with anyone, though he and Mom had a couple of short exchanges which included a kiss or two. The hospice aide came to bathe Dad and Dennis assisted him. When Dennis applied the aftershave (Black Suade), Dad was pleased!

Later in the evening, Mom went in to talk with Dad, and as she expressed her love we could tell he could understand her, and in a nonverbal way, expresses his devotion to her. A bit later, Dad became somewhat agitated and insisted on doing things for himself that he didn't have the strength to do. His nonsense chatter has increased, he is not eating, and drinking is becoming difficult. When he finially settled down, his breathing seemed different, more labored, so we called Hospice and the nurse who made the housecall felt Dad was in some pain. He advised us to give medication more often and so far it seems to help Dad rest more comfortably.

Tim arrived late last night, through a snow storm on I-15 and was at a stand still for three hours outside Beaver. We are grateful he arrived safely, Dad seemed happy to see him. Heather (Dennis' daughter) flew in this afternoon and Dennis Jr. and famiy arrived also. Tim is on the night shift tonight, keeping watch over Dad. We feel he is beginning to slip farther from us and pray the transition from this life to the next will be a sweet. calm experience.

Sunday, November 21, 2010

HOME AND RESTING

Gramps (Dad) came home Thursday afternoon. He was pretty weak, but tolerated the ride okay. When we arrived, I thought for sure he would go straight to his favorite chair, but he made a beeline to the love seat in the family room. He and Mom sat side by side for awhile- for the first time in two weeks, and Dad requested a milkshake! Thrilled that he actually craved food, I went to Sonic and bought both a chocolate and vanilla, hoping one would suit his taste. He tried the vanilla, but it was just too sweet. He drank some lemonade, and sat up for quite a while.

When Matt and I helped him to his bed, he had a hard time maintaining balance and finding the strength to walk. He was concerned about his lack of strength saying that he has never felt that way. Jake stayed with him through the night. We are grateful he is an RN and for all he has done to help in Dad's care. Friday Aubrey came to watch over Mom and Dad and before Jake left Dad's temperature spiked and he had an episode with chills that left him feeling extremely tired. He had a hard time communicating but when I went to see him during my lunch break and told him I loved him, he responded with a whisper voice and a knowing nod. He expressed that he was afraid to be alone and I assured him someone would always be with him.

I felt I should call my Mark, Dennis and Tim who were planning to come up later in the week and tell them they may want to come sooner because Dad seemed to weaken by the hour, and I wasn't sure if they would be able to visit much later in the week. Mark and Wendy caught a flight that afternoon and arrived toward evening. Dad had been pretty unresponsive through the day, but went they arrived, he sat up, requested ice cream, drank some water and actually visited a while. We were heartened

I slept over Friday night, checking him often and giving him pain meds when needed. He is receiving little medication for pain and for the most part rests comfortably. Mark and Jake bathed him Saturday afternoon and he said that felt good, but left him exhausted. As other children and grandchildren have arrived, he has greeted them and expressed his love. Shelly, Mark and Dennis are here and Tim is on his way (He is at a standstill in Beaver, the snow is causing delays.) My children, who live locally have each had a moment with Gramps. Shelly's kids are here and Dennis' son, Denny is en route. Mark Jr. said his goodbyes a few days ago as did Steve and family last week.

Mother is working through the gamut of emotions that accompanies losing one's life long companion. I see her going through the phases I've read about and pray we will be able to help her through this all. We are grateful for each other, for family and for our faith. We thank Mom and Dad for their lives of faith and love and for the example of strength they have always been to us.

Wednesday, November 17, 2010

Going Home Tomorrow

That last post was actually written on Nov. 13, not the 10th - I couldn't figure out how to change the date! Today is November 17 and Dad will go home tomorrow. He is off the epidural and taking oral pain meds. He has been on TPN (intravenous liquids) supplemented by what he felt he could eat, which was little. We hope his appetite improves now that he is finished with TPN and he can eat good ole HOME made food! Though he is pretty weak, he is still trotting around the floor more quickly than any other 84 year- old post surgical cancer patient could ever move!


We met our hospice nurse, Nancy, today and she seems to be an angel. She only lives a few blocks from Dad and Mom and has already helped us feel more at ease with this next part of our journey. She will manage his care including ordering all medical supplies and medications. Along with doctor and nurse visits, aids will be in three times a week and Nancy said she is always just a phone call away.


Dad had Tim worked out a trust last week and with the help of Legal Zoom, it arrived a few days ago. I brought it up to the hospital for Mom and Dad to sign, using the hospital notary. They were set to sign when it was realized Dad's ID was at home, so Mark Jr. and Sara went back to the house to retrieve it. When they were back, the notary was paged but never came, and never came. Then hospice called and said they were at the house with the equipment delivery. So Mark and Sara left to move some things out of the office and receive the bed, walker, etc. Meanwhile back at the hospital, the notary arrived and we discovered that the nurses on the floor could not act as witnesses, so I went down to the lobby and rounded up a couple of little old pink lady volunteers. They came up and we were told they were associated with the hospital, so they couldn't witness. So the pink ladies went with me to the surgical waiting room and asked if anyone would be willing to act as witnesses. A lady stood up immediately, her sister-in-law also volunteered and up we went to dad's room. They were both from Helper, Utah and one had previously worked for an estate planner. She took over the 'session', explaining the documents as Dad, Mom, the notary and she and the other witness signed. We were grateful she was here and felt it a blessing that we were able to find her.


After the signing 'party' we were instructed on how to take care of the colostomy and the wound specialist changed dad's bandage as Mark Jr. and Sara arrived to say goodbye to Gramps and take Grana home. On the way back to Springville, Mom took them out to a well-deserved dinner!



One hopes never to be in this situation, but now that we are here, we are so very grateful for the help that we have had and the help that is available and we see blessings in so many little things. Dad's nurses here in intermediate care have been so very caring and kind, the physical therapists have been robust young men who tenderly guided dad through his walks with positive feedback and genuine kindness. Vicki Doxey (mom's niece) works here at UVRMC and has been able to help us in so many ways - from poaching an egg for dad in her office using his little electric egg poacher to recommending our hospice nurse and rounding up the notary. We feel the Lord's tender mercy through the kind service of others.

Wednesday, November 10, 2010

Some Good News, Some Not So Good

We have had some great times over the past few months. After leaving Huntsman's Dad's health continued to improve. By September he was walking around the block, taking care of his own medical needs and doing his 'chores around the has as usual. We had some fun family get-to-gethers and Mom and Dad enjoyed numerous outings with Don and Bonnie and visits with David and Raelene and others. So the Summer that began on rocky ground ended on a high.

Then out of the blue, Dad was hit with what he thought to be a case of food poisoning. After several days of bowel distress, Dad went to see his internist and the PA advised him. When that didn't work he went back and tried other remedies to cure his diarrhea. In the mean time, Mom had her aching shoulder checked out by an orthopedist and found that the shoulder she broke nine years ago had never healed, I repeat, NEVER healed, and the metal plate connecting the broken parts had broken also. The doctor referred her to a specialist at the University of Utah Medical Center and surgery for a complete shoulder replacement was set for October 15. We made mom's pre-op appointment at the U. the same day as Dad's three month post-op appointment, and on Oct 6, I drove them to Salt Lake.

Dad had a CT scan, chest x-ray, blood tests and a few other inquiries into his overall being. At first report, tests showed nothing out of the ordinary . Dr. Stephensen told Dad to continue to seek help for his bowel symptoms and sent Dad to x-ray as I left to take Mom down the hill to the U Med Center for blood work. They shuttled Dad over to meet us when he was finished. Mom was worried about Dad's health and suggested she cancel her surgery until he was feeling better, but Dad insisted she go ahead with it.

We were up early on Oct 15 to take Mom to her surgery. All of us were all a bit nervous, especially Mom, knowing it would be a pretty long recovery. However, the shoulder replacement went without a hitch and left the surgeon puzzling over the fact Mom had lived with that arm, and its pain, for so many years! Mom had the usual post operative nuisances with nausea being the most annoying, but her recovery went well. Dad had a room at the U Guest House and I stayed at the hospital with Mom. Dad came over each day to be with her.

I could tell his condition was not getting better and after a couple of days, had John come and get him and take him home so he could get in to see a doctor. When he arrived home, he found a message on his phone from Huntsman's asking him to call and make an appointment with an oncologist because reports from the 6th had indicated some concerns with thickened colon, high white count and swollen lyphnodes. To make an even longer story a bit shorter.... we finally got to the oncologist on Oct 28. They told us Dad's cancer was back, terminal, and that chemo drugs could be used, but that those most promising would not work for him in the condition he was in. They ordered a colonoscopy, which was set for Tues Nov 2 in Provo.

Mom also had an appointment the 28th, her post op visit. The doctor was very pleased with her progress. So our visit did have a positive note for mom. She continues to improve daily and is doing most everything on her own, though she is still in a sling both day and night.

On Monday Nov 1, Dad received a call to report to the ER because of his high white blood count. We took him to Utah Valley Regional Medical Center, and after consulting with Huntsman doctors, they gave him an IV, some antibiotics, took some blood and sent him home to prepare for his colonoscopy the next day. When Dr. Dickenson did the procedure, he was unable to proceed very far because the colon was not totally clear, but he did seeof a pollyp near the rectum and a possibke mass behind it. They admitted Dad, had him down over a gallon of "Go-Lightly" ( a misnomer) and repeated the colonoscopy on Wednesday.

Our worst fears were realized when the results came back. The cancer appeared to have matastisised to the colon. They took out the pollyp, and took a biopsy of the mass. It was recommeded that Dad stay in hospital to handle the pain from the blockage and prepare for a possible colostomy. The surgery was done Tuesday November 12, on Mom and Dad's 64th wedding anniversay. Tim, Mark, Steve and Shelly were all here. Dennis and Debbe had stayed the previous two weeks and had just left for home. The surgery went well, but the cancer remains in his pelvis. The mass of monsterous malignancy is unoperable. The colosomy will give him gastrointestinal releif and allow him to eat and drink AND to go home, which is what he and all of us want.

Today Dad is resting pretty comfortably, on an epidural pump for pain. He can walk around the floor twice daily and is beginning to take some liquid lnouishment by mouth. The doctor says he is strong and the nurses proclaim him amazing ! But then, thats nothing we didn't already know!

Sunday, July 4, 2010

UPS AND DOWNS

Recovery certainly has its ups and downs! Dad was feeling pretty good when we left the hospital last Monday, but by the next day, he was exhausted. We just figured it was from lack of sleep, the trip home, etc. A home health care nurse visited Dad on Tuesday. Dad's blood pressure was low. She said he needed to drink more fluids. She came back the next day and took blood for tests ordered by doctors and Dad's blood pressure was lower than the day before.

Jacob (our RN son) and family arrived home from Disneyland Wednesday night and he checked on Gramps Thursday. His blood pressure had dropped lower and Dad had Jake buy him a cuff so he could monitor it on his own. It dropped some more and they called the Huntsman doctors to ask about it. Dad also showed signs of dehydration, and possible infection, so they wanted him back in the hospital. John and I were in Cedar City attending a play at the Shakespearean Festival (Great Expectations- the musical. It was marvelous, by the way!), so Jake drove Gramps to Salt Lake and stayed with him for the night.

After admission, they put Dad on an IV, monitored his vitals, drew blood, ordered a urine culture - all that basic "you're in the hospital" kind of stuff. They found his blood sugar as well as blood pressure was low. Neither Jake nor Dad slept well- wonder why? John and I drove back from Cedar on Friday, picked up Mom and went to the hospital. Dad's blood pressure was up to normal, his blood sugar had stabilized, he felt more energy, and when the doctors made their rounds that afternoon, they released him with the strong admonishment to DRINK MORE WATER!

Sooooo they are home again! Mom is pretty tired, finding that preparing Dad's food, caring for his medical needs and reminding him to drink is a full time job, but she just keeps on 'doin'. Dad is drinking more water and with his new blood pressure cuff, he is monitoring his blood pressure and watching for other signs of dehydration or infection. The doctor never called about the urine culture result so we assume it didn't show infection. He is moving around better, not as weak when he sits and stands and he walks at a pretty brisk pace. Dad says his abdomen is a bit tender, but other than that, he has no pain. He has a follow-up appointment in Salt Lake on Wednesday.

Heather, (Dennis' daughter) had surgery on Friday- tonsils, adenoids removed - not a fun one. Last we heard she was home, in some pain, but doing okay. Dennis and Debbie just seem to go from one medical drama to another :). Shelly and family will be here on Monday afternoon. Mom has invited all of our kids over for a planned pot luck dinner on the patio. Hopefully she will let us do the work and she can just sit and enjoy.

There are a few more photos posted, added Mark and Megan and a couple others, or at least they will be added as soon as I send them to Dayna K or Kirby. My technology has not extended to that point - yet. HAPPY BIRTHDAY SHELLY !! and GOD BLESS AMERICA!
Love to you all. - Dayna

Monday, June 28, 2010

Home at Last !

Dad was released from the hospital today! His blood count is still up a bit and they can't find a reason why, so it will be monitored at home. As we left, he mentioned again how grateful he was for all who cared for him at Huntsman's and that they were all so very kind.

Dad is glad to get snuggled into his own comfy chair and Mom is relieved to have these last two weeks behind them. I think they are both going to enjoy home with even greater appreciation than before. We drove by Del Taco on the way home and mom said, "Mmm a green chili burrito sounds good." Dad piped up that it sure would taste good so we made a "U" turn and headed back! It is probably the only food he has had in the past two weeks that really tasted good to him!

It has been fun to blog our "adventure" When Dad feels a little better, I'll teach him how to get onto it and he can write for himself. Meanwhile, know that we love you all and I'll keep posting every few days.

HOME At Last...

At Last... Gramps Home in his Own Comfy Chair

Welcome Home Gramps!

A Warm Welcome Home

Saturday, June 26, 2010

Over the Scare


Thursday night, while I was downstairs writing my last blog, Mom was helping Dad shower. As he finished bathing, he became nauseous and lost his dinner and what seemed to be most of his liquid intake for the day. Following this his bowels decided to begin working again and he lost even more body fluid. As he got into bed Dad felt very weak and dropped off to sleep just after the nurse attached his heart monitors. (Those little tabs they stick all over your chest when you are in the hospital:))

When the CNA came in a few minutes later, she couldn't waken him. I joined in calling his name and shaking him, mom also hurried over and shook him, but he was not to be aroused. His monitor showed okay oxygen and pulse readings, but the CNA became alarmed when she felt for his pulse and found it very weak. Quickly, she pushed the "All Staff" button, an alarm rang, and within seconds what seemed to be a dozen people rushed into the room with the "Crash Cart." They called his name, dropped his bed, and rushed around doing all those medical emergency team things you see on TV. Mom and I backed over to the corner of the room, mom sat down and I held her hand as we helplessley wathced the drama unfolding before us. As we retreated, I checked the monitor again and the numbers were still in the normal range, I couldn't understand what could be happening.

Looking back, it was surreal, almost as though we were watching this happen to someone else. The medical lingo flew, questions, answers, commands, verifications...and they were getting the paddles ready for difibulation. With all the medical staff surrounding him, we could not see Dad.
Just as true panic began to set in, I heard a gravely voice say,"What are you all doing here?"
Mom didn't here him, so I reassured her that he was awake and talking. The next thing he said was,"Where is my wife? Is she okay?" Mom heard that and holding back tears answered that she was doing alright.

The team continued to read monitors, question, answer, check records, confer, infer and so on. In the end, they ordered blood work, an EKG, IV fluid and decided Dad had a vasovagal response (look it up on wikipedia) and fainted- probably due to the stress of vomiting and dehydration. I also assume the overall stress of the past two weeks contributed to his response.


As the team filtered out of the room, they all offered kind words and encouragement the on call Doctor and Nurse Practitioner stayed to answer questions and offer support. It was just after midnight when Dad fell into a restless sleep. His breathing seemed deep and somewhat labored, and Mom didn't want to leave so she sat in a rocking chair and watched over him until around 3:00 AM. When Dad began to rest more comfortably, Mom consented to go to the hotel to sleep. I drove her downtown and came back to spend the rest of the night here in the room with Dad.


Needless to say, I was relieved when Mark and Megan arrived later in the morning. A social worker came by to talk to us about our "scary night" We continue to be impressed with the quality of care Dad receives here as well as the care and concern shown to us as family members. Jon Huntsman's vision of a warm, caring and professional facility is well realized.

Love to you all- except Dayna K., I'm going to cut off her little typing fingers. This has truly been a group effort. Mom is at the top of Dad's support list. She has done all she can to be here for Dad and to do things at home that Dad normally does. Dennis and Debbie have been troopers, driving Mom back and forth and doing things for her on the home front. Debbie is Mom's best hairdresser and Dennis' sense of humor keeps us all laughing! Jacob spent a night with Dad and he is our source for answers to medical questions. Tim gave us all a reprieve last week and Dad very much appreciated his visit. Nathan was Tim's back up man and we all enjoyed seeing him! Mark and Megan arrived just in time to help us with these last few unexpected days in the hospital. Megan kept Grana company at home and helped her with some chores around the house. Mom and Dad are looking forward to visits from Steve, Ashley and family and from Shelly and her family in the next week or two.

John has been my emotional support and Liz and Matt have helped keep the home fires burning. Matt and Josh have cared for Gramps' yard and cleaned the pond. Aubrey and Emily did some deep cleaning for Grana and Em also collected their mail. I know I have probably forgotten someone, so many have helped. Mom and Dad have appreciated the all the visits, phone calls and cards. All this support helps so very much. We know Mom and Dad will continue to need help through the next few weeks and I'm grateful so many are so willing to be there for them.

Dennis and I were talking about how grateful we are that we do have the time to help. Dennis is retired and I am off for the summer. If this had to happen, the timing couldn't have been better. Tim can take some more time through Family Medical Leave and will be back up when he is needed. How can we feel this is really a service, when Mom and Dad have devoted so much for us. I think we are all just giving back a little of what Mom and Dad, Gramps and Grana have given to us.


A Daughter's Love - For the Love of Lou


Today I want to write a post to honor my mother, Dayna Christine Green Tanner. I happen to have log in access so I can post pictures as my mom sends them to me throughout the days and long nights she has been staying at Huntsman's serving her father, Lou. I hope after this post she won't cut me off!

As I was reading through the posts she has made over the last couple of weeks I noticed that she makes mention of how thankful she is that others, her wonderful family members, Dennis, Debbie, Tim, Mark, my Dad etc. have made sacrifices to be here to help out and serve Gramps and Grana in this time of need. However, she has made no mention of all she has done to serve her father simply "For the Love of Lou."

I called her yesterday after I got the message that Gramps would need to stay a bit longer than expected, due to some complications that made for a very long and stressful night Thursday and into the early hours of Friday morning. Very exhausted and through teary eyes she she told me how thankful she was that Mark made it to Huntsmans when he did Friday morning. She said when he got there she just started crying, she says it is because she was so tired, but I know that it is only partly the truth. Caring for and being worried about Gramps and trying to comfort Grana had exhausted her, and she was thankful for the comforted relief that Mark brought. Now she could go to the hotel that she had checked Grana into at 3 am Friday morning and try to get a few hours of sleep. The peace of mind that Mark was there caring for Gramps and able to spend time helping Grana gain some peace of mind for herself too would allow my mom to get some much needed rest. This is only one night of the many she has spent sleeping at Huntsmans by Gramp's bed side.

My mother, Dayna is a beacon of strength, wonderful example of service and unconditional love. When she said she was sad that she couldn't make it to Kipa's birthday party this morning because she needs to be at the hospital with Gramps I started crying, not because I didn't understand but because she was still thinking of others and very little of herself. I am so thankful to have such an example in my life as my mother, Dayna Christine Green Tanner. I only hope that I honor her name by someday gaining the strength, faith, love and service she unwaveringly shows those around her, especially those she loves. This can be seen in this blog, at Huntsman, in the text messages she sends to update everyone, in every touch, kind word, happy face etc. that she brings to the world, and especially right now "For the Love of Lou."

I love you Gramps! We are all praying for your comfort, safety and healthy recovery and I also pray for your wonderful Daughter each day so that the Lord God can continue bless her so she can have the strength to continue to bless my life.

I LOVE YOU MOM!!! More than words can say...

Muah (big kisses),

Dayna Kathleen Tanner Kauo

Friday, June 25, 2010

Thursday, June 24, 2010

Awake at Last!

Dad woke up bright and early, a new man! Well at least he is closer to being the same ol' Lou. So far today he has taken several walks, kept down all his food and is actually drinking almost as much liquid as he is supposed to. His doctors say if all stays well, we will be headed home tomorrow. Mark flies in at 6 AM, will meet us here and hopefully we will be on our way home by 9:00 or 10:00.

I think both Mom and Dad are a little wary of care at home, however they will have a nurse come in for a while each day and physical therapy will assess his needs.

I know some of you have tried to comment on the blog and it didn't work. I think it is fixed right now. If you don't have an account, click annonymous then just be sure to add your name at the end of the comment and it should post.

Mom is here beside me and says: Thanks for all your help and for all your prayers. It has been nice to have all my children and grandchildren pray for us, help us and visit and we are looking forward to those who will yet be coming. XOXOXOXOX

Wednesday, June 23, 2010

Wake-Up Lavell,

Dad slept most of the day. He told the nurse she was probably getting tired of saying his name, as she repeated it often throughout the day in an effort to encourage him to be more active. We were able to convince him to get up for a few walks, and even became a more willing participant toward late afternoon!

Dad lacks any kind of real appetite. he ate breakfast, but couldn't keep it down. After mulling over the dinner menu, he chose to have a chesseburger and so far it has stayed where it needs to be - in his tummy.

We are hoping Dad will be able to go home tomorrow, but unless he can eat and drink more it is unlikely they will let him leave. His lower left lung sounds a bit quiet and so he will be using his little breathing machine thingy more often tonight and trying to raise the bar a little higher each time in order to expland his lungs.

Dad's surgical site looks good and is not painful. His blood pressure varies but has been okay today. All labs show that he is progressing nicely. The nurses think his sleeping is a result of the huge amounts of drugs he has had over the past week, and at his age it just takes longer to process it all out of his system. He is just taking his regular every day medications now and so we hope tomorrow will be a more WAKEFUL day!

Pray that Dad can stay awake more, drink more, hold down his food and have a more postitive attitude toward recovery. We think he's starting to feel a bit depressed. Phone calls and visits are welcome!

Love to all - Dayna

Tuesday, June 22, 2010

GREAT NEWS

The Pathology report is back! Dr. Stephensen came in late this afternoon and shared the report with us. Only 1 of 32 lymph nodes showed any sign of cancer. No cancer is present in the prostate or ureters and all surgucal margins are univolved. Bottom line: No further treatment needed. Dad will need ct scans etc. on a regular basis to watch for any signs of cancer elsewhere. We know it may reoccur but Dr. Stephensen said chances are good that it may not.

We are grateful for all of the faith and prayers extended on Dad's behalf. We thank our Father in Heaven for the peace and comfort we have felt so far and for this blessing of health and hope.

Dad still has some recovery time ahead. He is very weak after his stint with the pain meds, but this news, I think, will give him the incentive he needs to get better faster :).

Love to you all - Dayna

Snowed, Stoned, Stupified

While I was blogging last night, the nurse gave Dad some oral pain meds. The next thing Mom and I knew, he was zoning out on our conversation with a completely glazed look. The nurse helped us get him in bed and he slept- deeply- until we roused him for a walk around 7:00 AM. After the walk, he quickly nodded off. He was in and out...mostly out, most of the day. You can call it wasted, knackered, zonked, toasted or blitzed, stoned snowed or stupified, but any way you say it, it means he won't get those meds again!

The Three Amigos

Tim, Dad, and Dennis wearing Father's Day Leis made by Dayna K.

Monday, June 21, 2010

He's a tough guy!

Dad slept about 4 hours straight last night. Not bad for being in a hospital! They took out his epidural and he went for an early morning walk, had cream of wheat and toast for breakfast and took a three hour nap! He gets to shower today and get rid of his IV pain meds. All of this gets him closer to being able to go home. We think he may be home by Wednesday.

The surgeon came in while Dad was napping and said Dad was doing well and "He's a tough guy. We are all really pleased with his progress." Another member of the urology team came in and said the surgery Dad had is the "hardest" (most extensive) one they do and that Dad is coming through it very well.

Dad had a fun visit with Aubrey and Xander today. They rode Tracks up and Xander loved riding on the "city train!" Xander and I hiked up the hill behind the hospital and waved to Gramps from the top of a big rock!

Tim went home this morning, Dennis and Debbie will leave tomorrow. It was great having them here and I am so very thankful for all their help. I miss them already!

Love to you all - Dayna

Sunday, June 20, 2010

Happy Father's Day!

Dad celebrated a wonderful Father's Day! He was able to eat today!!! Though clear liquids were the only items on the menu, he enjoyed it all to the last drop! He gets the epidural out tomorrow, so he is on track to go home in the next few days.

Tim spent the night at the hospital and said Dad had the best rest so far. This morning he walked, exercised and sat in a chair for a couple of hours. Mom drove up with Dennis and Nathan and later Josh and Abbey came. They spent a pleasant afternoon visiting.

I am headed up tonight and will stay until he comes home. Mom has a hotel room for a couple of days to alleviate the delirium of the daily commute. Dennis and Debbie will be here a few more days to help with things. Mark and Megan are flying in on Friday. It has been nice having Tim and Nathan here. Dad has enjoyed all the fun conversation.

We feel grateful to be over what seems to be the worst of this surgery and to see home in sight!
- Dayna

Saturday, June 19, 2010

Looking Better

Things are looking better! Though Dad is still not resting as well as he would like, he had a better night. His blood pressure, nausea and headache are all under control and his pain continues to be little to none, thanks to the epidural.

Yesterday the wound team showed Mom how to care for Dad's ostemy. Jake and I watched also, and together we should be able to get it right when Dad gets home. Dad rested most of the day. Tim and Nathan arrived yesterday afternoon and drove up to Huntsman with Dennis and Debbie. They took mom home and John and I took the night shift. I stayed at the hospital and John spent the night at his nephew's (Ethan's) apartment.

The doctor came in early this morning and said things looked good. He said Dad had to take more walks today. He did two laps around the floor and a bit later the physical therapist came in and took him for another walk, had him walk up a few stairs and introduced some exercises for him to do. She left some "homework" for Dad. He was pretty tired after all of this and took a much needed nap.

Tim and Nathan came up and after his nap we helped Dad with another walk and his exercises. He was not too excited about it all, but knew he needed to get moving! He had a "bath" and Tim helped him shave. He said that was the longest he had ever grown his beard, and I know it felt good to him to fell clean shaven!

Dayna K. and Kavika came to visit. Dayna brought him a tea leaf lei she made him for Father's Day. She said it represents joy and good luck. Dad liked it. John and Kirby also came by with their kids. I think it cheered Dad a bit to see the little ones.

Tim is staying with Dad tonight. He will do a good job getting Dad to carry out his physical therapy and will be welcome company for him. They already discussed Dad's 1938 Ford. (The one Mom sold for $25, thinking she was doing Dad a favor). Tim found a photo on line and an ad for a '38 Ford. In good condition today it would sell for $39,000. Ooops, dont' tell Mom!

Happy Father's Day to all you Dads out there. Remember what Dad said, "Family is wonderful" and enjoy your family tomorrow. Love, Dayna

Friday, June 18, 2010

Restless Nights

Sorry I missed yesterday. Dad had a restless night Wednesday. One of his epidural meds was making him "jumpy" and he has been plagued with nausea. A headache added to the mix and all in all it was a pretty miserable night. His headache was helped with a caffeine drip and later in the day, he was able to go for a couple of walks.

Dad had some choice advice for the Celtics as he watched the game, and for the officials. He said neither team was playing very well and compared it to a high school basketball game. Dad doesn't like listening to the commentary on TV so the sound was muted. Mom asked Dad a question about the game and he said, "I don't know Betty, I'm watching it with my eyes closed." I didn't quite get it, but mom seemed to understand how he was getting something out of the game though he seemed both blind and mute to it. I guess that comes with over 63 years of marriage.

Jake stayed with Gramps last night. Dad did not rest well...again, but his bowels are showing some signs of waking up ! The nausea is somewhat lessened and the headache is mild. His blood pressure is down, so hopefully things will start to even out enough that he can get some much needed rest.

The Stoma Team is coming today to teach us how to take care of the ostemy. Tim will be here this afternoon and Dad is looking forward to his visit.

Mom is holding up okay. She was a bit frustrated yesterday and so took a walk around the floor. She was sitting in the waiting area and met a woman her age whose husband is going through the same thing as Dad. They had a nice visit and it was good for Mom.

Mom is here beside me and she says, " I am grateful for all the help everyone is giving me and for all of your prayers. I couldn't do it without you all. It is wonderful to have such a loving family and to know that families are forever!"

Love to you all! - Dayna

Wednesday, June 16, 2010

Resting

Dad did not get alot of sleep last night. He said the nurses call ringing in the hallway kept him awake most of the night. His nurse gave him some earplugs, but they didn't help much.

Health care visits began aroung 5:30 AM with one of the surgeons followed by nurses, aides, therapists, etc. After a walk around the floor and a sponge bath, Dad felt pretty tired, then complained of a headache and nausea. The pain control team said the nausea, headache could be a result of the epidural procedure from yesterday. (Before surgery, they had a hard time getting the needle in the right place and tapped a bit of spinal fluid. ) After some nausea medication, Dad began to get some much needed rest.

So, you know how Gramps will sometimes pretend he is asleep and then he will snort and scare the daylights out of little kids? Well he is sort of doing that today. We will think he is asleep and then he will blurt out something and enter into our conversation. It seems he likes to do it when we least expect it or when we are talking about him and he corrects what we are saying!

Dad's nurses have all been wonderful. Cami is his nurse today and she reminds us of Kasey Beall! She has a cute, sweet personality and her mannerisms are Kasey through and through. Hey Kasey, we think you should go to nursing school, cause you already have what it takes!

Several hours ago, as he was resting, Dad's blood pressure went up quite high. They think they are getting it stablized now. His pulse rate was a bit low, but it is also looking better. He has been sleeping off and on all afternoon, getting much needed rest. Dad says the pain is nil to minimal. His blood counts are good, color is great and the surgery site is doing just fine.

We hope Dad rests well tonight and feels more energetic in the morning. He should be up to short visits. Mom is doing okay. She is going home tonight with Dennis and Debbie,
they will be back tomorrow. I may stay another night.

Dad and Mom send their love to you all.

Taking a Walk

Gramps taking his walk. No matter what, he always looks so Handsome!

Tuesday, June 15, 2010

A Great Day

Dad had a pretty good night. He slept off and on and experienced little pain. He has an epidural as well as a cpak that delivers pain med when he pushes the button. He used the cpak minimally last night throughout the day.

The morning was filled with visits from nurses, aides, respitory therapists, pain management team, wound care team, physical therapists, student nurses, and even a doctor or two! They have all been helpful and ever so kind. The director of nursing came in and Dad told her she is doing a good job hiring, explaining that all his nurses have been caring, informative, helpful and so very nice. Dad is, as always kind in return. He enjoys talking with all who come in and it has been fun to listen to him as he asks where they are from, how long they have been in the profession, where they live, etc. He even gives them advice now and then :).

Dad was looking forward to a liquid diet today when the doctor gave him the grave news that he will not be able to eat or dirnk for about a week. Ugh! After that he tried to bribe, trick or tease the staff to give him some food. When they would ask if there was anything else he needed he would ask for a menu, a hamburger or even a glass of water -and he hates water! They wouldn't take the bait! He is doing okay with it though, says he is not hungry in his stomach, just in his mind.

Dad continues to amaze us with his stamina. One nurse commented that she never would have guessed dad was in his eighties- because of his looks as well as his physical shape. They got him up for a walk at 8:30 this morning. He took off like a bat out of heck and it was hard to keep up with him! Three quarters of the way around the floor, someone commented on his speed and he did a little two step in response! He went on four walks and figured he covered 5/12 of a mile. He boasted to the night nurse of his accomplishment and then said he thinks it should be worth some food stamps! (Still trying to get food one way or another:) )

Dad looked forward all day to watching the Celtics beat the Lakers and was pretty disgusted with the game. However, he still enjoyed commenting on the officiating. I guess you could say the only disappointing thing about the day was the Celtics miserable defeat, but hey, there's always the game on Thursday to look forward to.

Mom sends her love to all and thanks you all for your love and continued support. - Dayna

Monday, June 14, 2010

Long Day


Let's start with yesterday. Dad began the bowel cleanse and fast in preparation for the surgery. It was a pretty tough day. In the evening Dennis gave Dad a blessing, assisted by John, our boys and President Patrick. Things improved a bit after that. They also gave Mom a blessing which helped calm her anxiousness. We know the Lord is watching over them and can feel your love and prayers as well.

Mom and Dad were both up around 2:30 AM and we left for the hospital around 4:30, arriving just before 6:00. After some pre-op, Dad went to surgery about 7:30. He kissed Mom and told her not to worry and asked us to take care of her. Once again, thinking always of his sweetheart.

We were told to expect the operation to last six hours. We received the first update about two hours into the surgery and Mom was visably relieved to hear he was doing well. After that, she was able to doze a bit as we waited.

The surgeon visited with us around 1:00 pm, and was very pleased with Dad's response to such a major operation. He said he lost litte blood, vitals were good throughout, and that he felt he was able to get all the cancer her could see. The complications he expected because of the radiation Dad received for prostate cancer several years back were minimal. The lymphnodes, he said, looked and felt good, but a biopsy will tell us more. The report should be back by the end of the week.

We waited about three hours while he was in recovery. They were working to stabalize his blood pressure and to be sure the epidural was working. We received reports from his nurse during that time and she said he was still cracking jokes and doing well.

Dad is in his room now (7:30pm) and he looks pretty darn good! When he first arrived, he looked around for mom and with a concerned look asked if she was okay. She was a little teary and replied she was, that she was just glad to see him. It is sweet to see their tender exchanges of concern.

It has been a long day, one that we are glad is behind us. We expect Dad to be in the hospital for a week to ten days. He commented on how nice everyone has been. The nurses, doctors...everyone here are so very kind and helpful. His room is bright and spacious with a lovely view of the foothills above the Univerisity of Utah. If Dad has to go through this, we are pleased that he is able to go through it here.

I know many of you may want to visit. We should probably give him a couple of days just to rest. We will keep you posted and let you know when he is up to having company. In the mean time, our cell phones are on and you can always call. I'm grateful Dennis and Debbie are here. One nurse looked at us and commented on Dad's great support team. Dad said, "That's not all of them. There are a lot more." Were he able to type right now I know he would say, "A family is wonderful thing. Thank you for your prayers. I love your all." - Dayna

Friday, June 11, 2010

When the stoma nurses were educating us, they said that some people who have stomas give their new little appendage a name. So Gramps is sponsoring a contest to name his stoma! Submit your name to the blog or email to dayna.tanner@gmail.com or text me 801-380-6640. Suggested names will be given to Dad anonymously and he will choose the winner!

Surgery is set for 6:00 AM on Monday. It is estimated to last about 6 hours. I'll text my siblings through out the day and will update the blog as soon as possible after the surgery. Dennis and Debbie are here and will be here to help for a while longer. We have a hotel in Salt Lake Monday and Tuesday night. If needed, I will stay in Dad's room at night.

Dad has agreed to get wireless internet!!! It will be installed tomorrow and I will show them how to post/ comment on this site. In the meantime they send their love to you all. - Dayna

Thursday, June 10, 2010

Welcome To Our Blog

Welcome to our blog! For the love of Lou (Dad, Gramps, Lavell), I want to keep everyone posted about his progress as he undergoes surgery, and as he recovers. We all love Dad and that love and concern is certainly felt through your prayers, phone calls and visits. I chose to blog instead of Facebook in an effort to keep this more personal (private) and so ask that you do not share this address with anyone other than family and close friends. Please do not post it on Facebook. Comments will be shared with Dad and Mom and I will have them post personally as often as possible.

Just to recap the past few weeks, Dad was diagnosed with bladder cancer on May 11, 2010. He had surgery to remove and biopsy the tumor on May 14. Dr. Pratt was unable to remove all of the cancer and it biopsied as high grade and muscle invasive. Further testing showed no detectable cancer in the lungs or kidneys, though there was some restriction at the ureters in the bladder. A second opinion with Dr. Stephenson at Huntsman Cancer Institute in Salt Lake confirmed that the bladder and prostate should be removed. This surgery will include ileal conduit surgery which constructs an alternative path for urine to leave the body and will be performed by Dr. Stephenson at Huntsman Cancer Hospital in Salt Lake on June 14, 2010.

Dad went to his pre-op appointment today. Following a check-up and some blood work, we met with the stoma nurses. They explained the procedure he will undergo and how to take care of the "stoma". They were very kind and did a good job making it all understandable. When they were finished, I think we all felt a little relieved because they made it seem so very 'do-able.'

To put it simply: The surgeon will take the ureters (tubes that carry urine from the kidneys to the bladder) and connect them to a small section taken from the small intestine. This section is called the ileal conduit. The ileal conduit carries the urine to the outside of the body through the stoma (a very small hole in the abdomen) to a bag that fits tightly around the stoma and hangs comfortably under the patient's clothing. The bag is emptied 3-4 times a day and is changed every few days. Supplies are readily available and are covered by insurance.

The nurses assured Dad that after a few weeks, he will be able to handle things routinely and will be able to do anything except hot tubbing. Though hot tubbing is a passion (ha ha) he took this quite well.

Many of you are asking how Mom and Dad are doing. They are, of course, anxious about it all. They have just taken things a step at a time. I have observed that they are each more concerned about the other than they are about themselves. Mom has expressed that she hates to think about Dad going through all this. She has tried to limit his activities, make sure he takes his meds on time, prepare his favorite meals and let him sleep late without complaining about it.

Dad has expressed his hope that all of this not be too hard on Mom. He is ever the loving husband, opening her door (even when we came home late at night after the first surgery and he was still a bit woozy), carrying her purse and doing his part around the house. I have noticed an extra tenderness expressed between them. We had a family gathering on Memorial Day. Dad enjoyed every minute of it. He was even on the grass wrestling with one of the little boys. He expressed , "Isn't family wonderful!"

I know they think of you all often and pray for you daily. They look forward to your phone calls and are comforted to know that Tim is coming next weekend, Mark in two weeks and Shelly the week after.

Love to you all! - Dayna